The arrangements have been a joint collaboration with The ME Association, Action for ME, the Association for Young People with ME (AYME), The 25% ME Group for severe sufferers, and the Young ME Sufferers Trust.

This meeting will focus on the difficulties and delays in diagnosis, ME and CFS in children and adolescents, the existing range of treatments, and the latest research and its impact on the development of new, disease-modifying treatments.

Subjects will include:

• Diagnosis: the patient's perspective (Jez Harding, of Jez Harding Consulting Ltd, London)
• A rational, efficent and practical approach to diagnosis (Dr Abhijit Chaudhuri, Essex Centre for Neurosciencies)
• ME in children and adolescents: the patient's persoective (Miss Shannen Dabson) Addressing the educational impact of ME (Hardip Begol, Department for Children, Schools and Families)
• Treatment: the patient's perspective (Ms Annette Barclay)
• Treatment: evidence-based and pragmatic approaches (Professor Anthony Pinching, Peninsula Medical School, Truro)
• Research: what do patients want and why isn't it happening? (Dr Neil Abbot, ME Research UK)
• ME: a research orphan for too long (Professor Stephen Holgate, University of Southampton).

Les mer: The ME association